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I Had Cancer Guidelines

We're all here for similar reasons - we've been touched by cancer in some way. It’s up to all of us to show each other that no one is alone. Your IHadCancer profile is your own place to call home during this crazy thing called cancer, we just ask that you keep these simple guidelines in mind when participating.

1. Always Be Nice. This is a place for connections and conversations – we encourage you all to talk openly but please remain considerate in all of your engagement. Don’t post obscene, hateful or objectionable content. Abuse and disrespect will not be tolerated in the IHC community and is subject to deletion and user removal at our discretion.

2. Be a Good Friend. The IHC community is a family. Please remember to be a good friend to the connections you make on IHC. Ask questions that you wish someone would ask you; if you can’t find the right words to say, send a hug, it can speak louder than words. A simple gesture goes a long way.

3. Don't Spam. This includes sending unsolicited messages of any nature, posting links to unrelated content, promoting a survey, fundraiser or product where it shouldn’t be promoted. If you aren’t sure if something is appropriate to post, e-mail us and we’ll let you know.

4. Think Before You Post. Everything you post on IHadCancer is secure, but it is up to you to monitor how much or how little information you are sharing about yourself and your experience. Please don’t share personal or identifiable information like your mailing address or your full name and don’t share other member’s information.

5. If You See Something, Say Something. We work hard to make sure these guidelines are followed closely but if you see something that doesn’t’ feel right to you, please let us know. We review every report we receive and will take anything you say to heart. We promise.

6. Be Open. Welcome newcomers and help guide them through this journey based on your own experience. Whether you are a survivor, fighter, caregiver or supporter, you have valuable information that can very well help someone else who is just beginning the cancer journey. Be open to sharing experiences and give someone else the gift of your time.

Thanks for being a part of our community. It’s up to all of us to ensure that IHadCancer remains a place for us all to call home when dealing with the ups and downs of a cancer diagnosis.

Joseph's picture
Joseph Connect

Survivor: Nasopharyngeal Cancer

Topic: Nasopharyngeal Cancer

ALL the Nasal Pharyngeal survivors out there ,dry mouth is a common side effect from the radiation treatment to the head and neck area with this cancer, Some are severe ,our salivary glands have been fryed and destroyed, A tip thsat helped me ( carlsons cod liver oil)it is imported from Norway,and it is not cheap but it helps a great deal.It comes in lemon flavor also. Also apply the lotion your doctor gives you (i was given a lotion called aquaphor)apply daily or a lotion of your choice.Check with your doctor but i have spoke with many survivors and they all have their own they like. Key is to appy it everyday to avoid scars and burns on your neck and shoulders. It will take it away with no nasty scars long term.This can be useful to all going thru radiation treatment. Hope this helps my doctors liked this so much they started to recomend to patients with npc cancer,we can bring things to our doctors attention so please share with them take notes and always communicate with others going thru cancer.

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