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I Had Cancer Guidelines

We're all here for similar reasons - we've been touched by cancer in some way. It’s up to all of us to show each other that no one is alone. Your IHadCancer profile is your own place to call home during this crazy thing called cancer, we just ask that you keep these simple guidelines in mind when participating.

1. Always Be Nice. This is a place for connections and conversations – we encourage you all to talk openly but please remain considerate in all of your engagement. Don’t post obscene, hateful or objectionable content. Abuse and disrespect will not be tolerated in the IHC community and is subject to deletion and user removal at our discretion.

2. Be a Good Friend. The IHC community is a family. Please remember to be a good friend to the connections you make on IHC. Ask questions that you wish someone would ask you; if you can’t find the right words to say, send a hug, it can speak louder than words. A simple gesture goes a long way.

3. Don't Spam. This includes sending unsolicited messages of any nature, posting links to unrelated content, promoting a survey, fundraiser or product where it shouldn’t be promoted. If you aren’t sure if something is appropriate to post, e-mail us and we’ll let you know.

4. Think Before You Post. Everything you post on IHadCancer is secure, but it is up to you to monitor how much or how little information you are sharing about yourself and your experience. Please don’t share personal or identifiable information like your mailing address or your full name and don’t share other member’s information.

5. If You See Something, Say Something. We work hard to make sure these guidelines are followed closely but if you see something that doesn’t’ feel right to you, please let us know. We review every report we receive and will take anything you say to heart. We promise.

6. Be Open. Welcome newcomers and help guide them through this journey based on your own experience. Whether you are a survivor, fighter, caregiver or supporter, you have valuable information that can very well help someone else who is just beginning the cancer journey. Be open to sharing experiences and give someone else the gift of your time.

Thanks for being a part of our community. It’s up to all of us to ensure that IHadCancer remains a place for us all to call home when dealing with the ups and downs of a cancer diagnosis.

pammy53's picture
pammy53 Connect

Survivor: Other/Rare Cancer

I had cancer in 2009 / 2010 it was to my right tonsil and a secondary lump on the right side of my neck however in 2009 / 2010 I started to have my treatment I had a operation on the 1st April to have right tonsil removed . Then on the 4th may I had to have a gastronomy feeding peg inserted into my stomach . On the 20th of May I started to have radiotherapy every day for 7 half weeks and chemo once a week half way through my treatment I stopped it saying that I had enough at the time I was in hospital for ten days because I kept vomiting my weight plummet from 13 stone to 10 st . I had my treatment in Cambridgeshire England as I was living there at the time . I lost my hair couldn't speak properly . Eat or drink . I was on oral morph and sickness medicine . After mt treatment ended on the 12th July 2010 I moved into my son's home in wigan England . I had to have nurses come in every day macmilan nurse came every week . In 2011 I moved into my own home my hair started to grow back . I had peg feeding tube removed in July 2012 I still have to see the consultant every 3/4 mths . I still have to have pureed or mash food I have to have sips of water to keep my mouth moist as I no longer have salava glands . I have to be careful with what I eat because of choking . I recently asked my gp if I will ever be able to eat what I could before I was ill he said no not now . My speech is still weak . I can no longer drive or go out to enjoy a meal . I have now got other health problems which I have to have a carer to look after me . Sometimes I do feel that I have had enough of everything but then I look at my children and grandkids and think what would they do if I wernt here . I just thought you all would like to read my story . I don't know if anyone out there has had the same as me would be great to hear how you cope with life after cancer .
Nov 22 2013 5:20am |
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