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I Had Cancer Guidelines

We're all here for similar reasons - we've been touched by cancer in some way. It’s up to all of us to show each other that no one is alone. Your IHadCancer profile is your own place to call home during this crazy thing called cancer, we just ask that you keep these simple guidelines in mind when participating.

1. Always Be Nice. This is a place for connections and conversations – we encourage you all to talk openly but please remain considerate in all of your engagement. Don’t post obscene, hateful or objectionable content. Abuse and disrespect will not be tolerated in the IHC community and is subject to deletion and user removal at our discretion.

2. Be a Good Friend. The IHC community is a family. Please remember to be a good friend to the connections you make on IHC. Ask questions that you wish someone would ask you; if you can’t find the right words to say, send a hug, it can speak louder than words. A simple gesture goes a long way.

3. Don't Spam. This includes sending unsolicited messages of any nature, posting links to unrelated content, promoting a survey, fundraiser or product where it shouldn’t be promoted. If you aren’t sure if something is appropriate to post, e-mail us and we’ll let you know.

4. Think Before You Post. Everything you post on IHadCancer is secure, but it is up to you to monitor how much or how little information you are sharing about yourself and your experience. Please don’t share personal or identifiable information like your mailing address or your full name and don’t share other member’s information.

5. If You See Something, Say Something. We work hard to make sure these guidelines are followed closely but if you see something that doesn’t’ feel right to you, please let us know. We review every report we receive and will take anything you say to heart. We promise.

6. Be Open. Welcome newcomers and help guide them through this journey based on your own experience. Whether you are a survivor, fighter, caregiver or supporter, you have valuable information that can very well help someone else who is just beginning the cancer journey. Be open to sharing experiences and give someone else the gift of your time.

Thanks for being a part of our community. It’s up to all of us to ensure that IHadCancer remains a place for us all to call home when dealing with the ups and downs of a cancer diagnosis.

txyellowrose's picture
txyellowrose Connect

Supporter: Other/Rare Cancer

Topic: Emotional Support

Follow-up with surgeon went great; he is very pleased. He wants me to have a CT scan in 6 months and see him when the results are ready from that. First visit to oncologist (I'm newly diagnosed) is next week. I'm just venting here, expressing thoughts I really can't share with my beloved husband yet. My cancer is a rare type. There really isn't a "gold standard" of treatment & not an abundance of info. to be found, not enough case studies, etc. From what I have found so far is average combined 5-year survival for all stages is 76%. There is not enough documentation to indicate that chemo has any real effect on long-term survival. I know from my breast cancer experience 11 years ago that stats don't mean squat. I could live to be 90 or be gunned down in the parking lot of Walmart tomorrow. Right now I am turning over in my mind pros & cons of chemo if the onc recommends it. I'm soon to be 54 & have had (and am having) an amazing life. My spirit says to me I think I'll take 4-5 years of rocking this Life versus 5-6 of being wasted from chemo effects and putting my DH through caregiving me while chemo ravages me. Quality versus quantity. Again, I'm just venting here; that's what a support group is for, right? Hopefully the onc won't say chemo is needed. I'm just trying to put my thoughts and beliefs in order prior to the appointment . . . just in case. Typed this on my iPhone, so please excuse any typos. Thanks for listening! Peace, strength, love and light to all!

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