I Had Cancer Guidelines
We're all here for similar reasons - we've been touched by cancer in some way. It’s up to all of us to show each other that no one is alone. Your IHadCancer profile is your own place to call home during this crazy thing called cancer, we just ask that you keep these simple guidelines in mind when participating.
1. Always Be Nice. This is a place for connections and conversations – we encourage you all to talk openly but please remain considerate in all of your engagement. Don’t post obscene, hateful or objectionable content. Abuse and disrespect will not be tolerated in the IHC community and is subject to deletion and user removal at our discretion.
2. Be a Good Friend. The IHC community is a family. Please remember to be a good friend to the connections you make on IHC. Ask questions that you wish someone would ask you; if you can’t find the right words to say, send a hug, it can speak louder than words. A simple gesture goes a long way.
3. Don't Spam. This includes sending unsolicited messages of any nature, posting links to unrelated content, promoting a survey, fundraiser or product where it shouldn’t be promoted. If you aren’t sure if something is appropriate to post, e-mail us and we’ll let you know.
4. Think Before You Post. Everything you post on IHadCancer is secure, but it is up to you to monitor how much or how little information you are sharing about yourself and your experience. Please don’t share personal or identifiable information like your mailing address or your full name and don’t share other member’s information.
5. If You See Something, Say Something. We work hard to make sure these guidelines are followed closely but if you see something that doesn’t’ feel right to you, please let us know. We review every report we receive and will take anything you say to heart. We promise.
6. Be Open. Welcome newcomers and help guide them through this journey based on your own experience. Whether you are a survivor, fighter, caregiver or supporter, you have valuable information that can very well help someone else who is just beginning the cancer journey. Be open to sharing experiences and give someone else the gift of your time.
Thanks for being a part of our community. It’s up to all of us to ensure that IHadCancer remains a place for us all to call home when dealing with the ups and downs of a cancer diagnosis.
I was diagonosed in Nov 1999. This day changed by life forever. Never dreamed that going to the doctor because of an earache would turn out to be leukemia. My red blood count was 6. My family doctor sent me to the hospital. The next day I was given a bone marrow biopsy. My family took me to the James. It was hard to accept the idea that I had leukemia and not much time to live. I took my chemo treatments, many tests, 5 ports, Two of my sisters and one brother were tested for a bone marrow transplant. There was no match. The next step was to clean my blood and extract stem cells to be grown and replayed. That was not sucessful. Although I do not have a lot of memories of all the treatments. Dr Guido Marcucci asked me if I was interested in a trial research program. The drug used was IL2. During this treatment I received high doses in the hospital, spent the night in a motel one day a week. I gave myself lower dose at home daily. My insurance from work would not pay for the drug or hospital admission. I had wonderful doctors, nurse, home nurses and family to support me. If your doctor suggest a research drug, I would recommend them. Although I went though this and today I have been in remission since 2001, everytime I get an earache; and end up going to the doctor, first thing I ask them to do is blood work.
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